Boy, 7, undergoes life-changing stoma surgery after years of bowel problems
A brave seven-year old has undergone life-changing stoma surgery after suffering years of debilitating bowel issues.
Jax Batty, 7, who was diagnosed with Chronic Acute Constipation, had the surgery in September at the Sheffield Children’s Hospital.
Doctors were left with no choice but to operate after the treatment and medicine they gave him stopped working.
He has since been fitted with an ACE stoma, which helps him go to the toilet by pumping medication into his bowels.
His mum Mel Batty, 33, said : “It was a bit of a shock when we first got told his treatment wasn’t working. Within six weeks he had the surgery, but he handled the shock of it well.
“He has since had a bit of an issue with his anxiety, but he is being treated for it after the school recommended some people who he could speak to about it.
“Jax should have been home after a few days, but had a couple of issues which meant he stayed at hospital for a week.
“Overall, he had to recover for about three months.”
But now that Jax is back at home, he has gotten used to the stoma.
Mel added: “It’s manageable for him now, he was worried at first, especially about the bag coming loose, but he has some special belts that were made by my sister-in-law that help him keep it in place.
“He has an irrigation bag which pumps medication into his bowel and helps him go on the toilet. It still takes him about an hour to pass it all each day, but it’s a lot better than before.
“He’s had issues all of his life with his bowel, so this is a big help to him and much better.
Jax is still dealing with some side effects of the operation.
Mel said: “He hasn’t got his appetite back fully since the operation, as well as his medication being up and down, but he is doing okay.
“Jax has to eat a really good diet with plenty of fruit and vegetables, as well as drinking lots of fluids because of it.
“I don’t think a lot of people understand the extent of it, it’s a lot more than just constipation. We’re just hoping this treatment will continue to work.”
Since his surgery, Jax has been able to lead an active lifestyle, and plays in a football team.
His mum said: “His first question to his surgeon was whether he could still play football. Thankfully he can!”
Now that Jax has recovered, he has decided to try to help others in a similar situation.
He is raising money for ‘A Bear Named Buttony’, a charity which provides children undergoing similar surgeries with a bear.
Mel said: “He loves the bear he was given, it hasn’t left his side since and makes a big impact on all of the kids who get one.”
He is hoping to raise enough for 30 bears, which cost £30 each, but he has set his GoFundMe target to £1000.
So far he has raised an impressive £229.
“He has done a name card competition with Discoveries, the football team he plays for, raising the money for two bears there. The rest of the money has come from donations.
“We didn’t know about the bears until Jax got one of his own, and they all come with their own stoma so the kids do not feel alone when they have the surgery.
“It also helps him explain it to his mates who do not know what it is, but without him having to show it.”
“Jax has struggled with anxiety since the operation and it has helped him get back on his feet. It was in the operating theatre with him, in recovery with him, and sleeps with it every night.
“They cost £30 each to make, and it makes such a big difference to the kids.
“I just want to say thank you to everyone who has donated directly or donated to the GoFundMe.”